Week 20

Hi all! Sorry for not updating sooner, it feels like it was just yesterday that I last posted.

With that said, it's update time!!

Here are some questions I've received via email that I thought I'd list & answer:

How do you feel physically? Pretty good! Better than I thought I would at this point, actually. 

Are you in pain? No, it's more of a tired ache/soreness at the end of an active day.

Can you run? I can! I started up on badminton again just this week and played very comfortably even though I felt like my heart was gonna explode lol! Months of taking it easy will do this to you.

Can you bend your toe? I can with my hand but not much on it's own. It bends as much as it did back at week 14.

Does your cut hurt? Not really, it stings lightly sometimes but it's probably because the scar away sheet is so sticky, it sticks to the skin so it doesn't let it move like it should. BONUS: Everyone thinks the sheet is a band-aid so they extra stay away from my feet haha!

What shoes are you wearing? I made the switch to very cushy comfy flats, both open and closed toe. The closed toe fit comfortably but I do feel more tired on the days that I wear them. Because of this, I haven't bothered with heels. It would be too tiring.

How's the swelling? There is still some if I walk around a lot. I just take off my shoes for a while if they start feeling tight. It doesn't last very long. 

Are you limping? Yes, if I'm tired I walk with an obvious limp lol

Have you bumped your foot/toe? Yes. I slammed my toe into the corner of the couch a couple of weeks ago. It hurt but no more than if it had been any other toe.

Did you ever bump it while wearing the fixator? No.

Did you get an infection? No but this is not common. Most people get minor infections that clear up quickly with antibiotics. I have absolutely no clue why I didn't; everyone is different. 

How is your toe nail growth? It's normal which was unexpected. The nail bed stretched with the rest of the toe and now it looks like a good ol' normal toe nail :D

Are you still using the bone stimulator? Yes. I'll use it 'til it dies I guess!

On to the pictures!

Closed toe cushy flats! Very comfy :)

Scar Away Week 10 :)

I'm feeling great emotionally too. I'm really happy with my results and sometimes forget that I got it done. It goes both ways: sometimes I forget my foot is normal now and sometimes I forget I ever had brachy. A good friend of mine threw a pool party recently and while I didn't hesitate to take off my flip flops and get in the pool, I could not help but think about the strangeness of the situation. NEVER in my life did I think I would actually be able to do that but as I sat there with a my group of friends on the pool edge with my feet in the water, I thought to myself "this isn't that different from before". In other words, I guess I had some glamorized view of what it would be like to not have brachy, but really my life was already great all along.  I'm exactly the same person and my friends are the exactly the same great people. Even with brachy, I accomplished a lot. The reality is that brachy didn't hold me back as much as I recently thought it did. If anything, it taught me to be resourceful and problem-solvy. Flip flops and barefoot walking are cool but I can't say that I didn't have a great life before surgery. With THAT said, I'm still very glad I did it. I know I probably sound completely mental to anyone but brachyfolk (and even then lol). I hope this made sense & I'll try to tone down the crazy next time ;)

Thanks for following & have a wonderful week!

Week 15

I'm back from my last appointment! Everything went well & the x-rays look great. I'm allowed to go bicycling and wear my heels again! HEEELS! I had secretly tried on some lower heeled sandals a couple of days ago and it felt fine. My foot doesn't go all the way in yet because of the slight swelling but I'm almost there. Also, I have to hold off on running for another month. My latest x-ray showed 24.7mm lengthened. Clearly I had forgotten to include the first 2 full turns at the office in addition to my 22 day distraction so that's the official length ;).

Anyway, I asked Dr.Nagler to send me the picture he took on my first appointment back at the end of March. I've mentioned previously that the only "before" pic I have is the blurry one posted in the first post. So here it is:

Before & After

It's kinda painful to look at and shocking to see it in detail. The curved middle toe, the corn and the tiny nail on the brachytoe. It sounds harsh but my internal reaction when he showed me the pic was something along the lines of "kill it with fire!!". Not very nice of me but it's the truth. I don't feel that way about all brachytoes, just the one that used to be mine. Most brachytoes look adorable as you can see on the facebook group I've posted on the right. In my opinion, mine was too severe. I had already forgotten.

I'm so grateful to Dr. Nagler and his staff, they're all amazing. This whole ordeal is a long process and God bless them for doing it. I can't think of a better way to express my gratitude than with food so I brought them my favorite cupcakes from Crave.

ScarAway Week 5

Scar update time! It looks the pretty much the same as last week's pic hehe. I still have several weeks of ScarAway to go so I'll keep posting pics. Also, I'm walking normally. I got another pair of sneakers in my regular size and am now using those. YAY for reduced swelling!

I've gotten several questions via email about my treatment. The main one is "who is your doctor?". With his permission I've posted his info on the right panel of this blog under "Who fixed my foot?".

The second most asked question is "would you do it again?". The answer is yes yes YES. If I had brachy on my other foot, I'd be in the middle of distraction right now LOL!

@ the beach

Squeezing into a 3 1/4 inch heel sandal

I went to the beach on Saturday and took a pic of my feet. No more burying in the sand. So that's it for now. If you have any questions, feel free to email me or just ask in the comments section :) Have a great rest of the week and weekend and as usual thanks for following!

Week 14

Here are some pictures comparing toe flexion. As you can see, I am sloooowly starting to bend the 4th toe with the others and even the others are able to bend further down. I'm attributing this to the reduced swelling.   It's nowhere near my pre-surgery flexibility or my left foot's flexibility but I'm hoping to get there eventually. If  I don't get there I'll still be 100% fine with it! Anyway, it's bending more than I thought it would considering it's only been 4 weeks since the fixator was removed! All pics were taken with me bending my toes with all of my might.

Trying to bend!

Comparing left & right foot flexibility

Here's a scar update pic:

Starting week 4 with ScarAway

My scar was feeling a little sting-y today when I got home from work because I did a lot more walking than usual. The stinging didn't last long :). Other than that there isn't much else to report on so that's it for now! Thanks for following ;)

Week 13

Getting back into the groove!

I'm back at the office and it's been going great! My job is pretty tame so it's not really a major transition. My coworkers have been great and they threw a welcome back party for me! It was so sweet. It's good to be back. And to my surprise my sleeping pattern returned to normal immediately but then again I've never had sleep issues.

I'm still wearing my tennies. I've ventured out in flip flops twice this week after work and have done well with them since they're cushy. But for the most part the tennies are on my feet. They look funny with my business attire but oh well! Also, I wear my bone stim at my desk and sometimes walk around with it on to stir up my coworkers LOL!

Here's a picture of my scar starting week 3 of ScarAway:

The scar is 1.5 inches long and it's totally flat. Before I used the sheets I could tell that the scar was starting to sink in but it has now smoothed out. It's hard to believe this is the same foot that looked tattered and bruised just a few months ago. 

So that's it for now. If you have any questions, please don't hesitate to ask. This whole experience is still fresh in my mind. I'm glad I have this blog to look back on once I start to forget what I went through. And if you're going through a rough time in your recovery please remember that everything heals eventually. We are much stronger than we think. And like I said, this is the same foot that looked like a discolored zombie foot a few months ago: 

I'll be posting more pics and maybe a video showing toe flexibility. Have a great week and weekend everyone!

Week 12

Week 12 is here! It's been an eventful week and weekend, I entertained family from out of town. This means there was a lot of walking around doing fun tourist-y things around the city. It was tiring but fun and painless.

Back at home on several occasions I kept mindlessly covering my foot. My husband quietly brought this to my attention as I started to burrow my foot into the couch cushion. I couldn't believe myself! After everything that's happened the past 3 months!! LOL! Force of habit.

Anyway here are some new pictures:

My scar is very flat to the touch. It's painless and the redness is actually the mark left by the silicone sheet which I've cut in half because the thin scar doesn't need all 1.5 inches of width. The sheets are very easy to use and I forget I'm wearing them :).

Oh and I finally hung out in the pool! It was long overdue since we're halfway into summer already! I'm still wearing my tennis shoes although I tried to cheat and wear some sandals out but it feels A LOT more secure/supporting for now to wear the tennis shoes. And I'm still using the bone stim.

So that's pretty much it! It's going pretty great & I'll keep posting scar updates. Have a great week everyone and have a great 4th of July!

Update

So it's going on 5 days since my pins were removed and it's been great. I was walking around normally with the darco shoe up until yesterday. I bought some Champion sneakers at Target and went up full size. They're very comfortable and very cheaply priced which is good because there is no way I'll be able to wear them once my foot is no longer swollen. I wore them yesterday with my regular socks (of which I have quite the collection due to years of hiding my foot) and drove to lunch!

It felt so good to be able to drive again and I had no pain. I was nervous at first but my foot was fine so off we went! I walked around a lot, we went shopping afterwards and only got tired once we were waiting in the long line at the tea shop. I sat down for a little while our drinks were being prepared and then I was off walking around again. I'm walking around normally but with a slight limp once I'm tired. My foot didn't get as swollen as I thought it would so yay for that!

Here's a picture of my scar:

Yesterday I started wearing the ScarAway silicone sheet (the beige part) taped down with medical tape to keep in in place. I'm wearing it already as a preventative measure. The box says not to use on open wounds and although it appears pinkish, the middle part of the scar has been closed for weeks now. It was really stiff and I can already feel the silicone softening it. The pin holes don't hurt at all but I'm giving the top 2 more time to heal before I move the strip vertically & cover the entire scar.

So this is my last week before I return to work. My goodness these 11 weeks flew by quickly but I've got to say that cable, Netflix, and my laptop made things a lot easier to deal with. Not to mention the recliner I've been nesting in. And I'm still not used to the new look of my foot. I was trying on my flip flops by the mirror and I still can't believe that's my foot in the reflection. I'm so happy I did this. I can hardly believe I actually did it and went through surgery and everything else. I'm proud of myself for not bolting out of the doc's waiting room on my first appointment even though it was all I could think about. I was sitting there with all that doubt in my mind thinking "how could I be this self centered and consider SURGERY for something non-life threatening?". Luckily I got through it and dived right in anyway. It may not have been a life threatening condition but it was holding me back. I sat there and thought about how this past January I was invited to go to Miami at the end of July and how my excitement immediately turned into dread because I'd be worried the entire time about hiding my foot on that beautiful beach :(. My only gripe now is that it's blazing hot outside and I don't want to wear socks & sneakers while I'm out wearing cute outfits...but it's no big deal! It won't be for much longer anyway :) 

Thanks for following & have a great week!

Pins Are Out!

I'm back! I'm excited to say that my pins were removed today. I went in to my appointment and they immediately took xrays. The doc came in, took a look at the xray and said "you're good to go!". 

He put on gloves, went to get pliers and screwdriver and got to work. He unscrewed and removed the fixator (the black bar) first. Then he took the pliers and started back to front unscrewing each pin. I bled a tiny bit (less than the girl in the youtube video I posted a few posts back) and I felt nothing! Just a slight pulling at the most but no pain whatsoever. I kept bracing for pain but it never came. Keep in mind that this was with no painkillers or numbing shots. I was very nervous and I'm so happy that the whole ordeal was over so quickly, it took maybe 5 minutes MAX. Would I do it again? In a heartbeat.


So here are the new pics!

4th toe is relaxing even more probably due to fixator removal 

The doc says to keep wearing the darco shoe for a couple of days to adjust without the pins and then transition to athletic lace up sneakers. I may have to go up a size to accommodate the swelling. He says to keep using the bone stimulator and stay away from high impact exercise for the next 6 weeks. So that's it! My next follow up appointment is in 4 weeks and they said I'll be doing so good I'll probably cancel it haha! I'll start using those over the counter silicone sheets on my scar as soon as the pin sites are closed.

I want to give special thanks to Brachynomore for creating and keeping up with her blog and for her support.    Her foot looks absolutely fantastic and I wish her all the best in her healing :) I'll be checking her blog as usual for new posts ;). 

And to Byebyebrachy and Brachychik who are going through this process at the moment, I want to say thanks for your support and stay strong! It will be all over before you know it :). 

Brachygoneforever is having her surgery soon & I want to wish her good luck! 

To all the lurkers: you are not alone and feel free to ask questions! We Brachybloggers don't bite.

Have a nice rest of the week & weekend everyone and thanks for following!

Week 11

Another week has gone by. It went by nice and quickly. This is the week my fixator is scheduled to come off (in 2 days to be precise). I've been using the stimulator everyday. Also, I regained control of my 3rd toe around 3 days ago. I've been wiggling my toes constantly and feel that doing so not only helped me regain control of the 3rd toe but I feel the 4th toe trying to wiggle with the rest although it can't because the metatarsal still has 4 pins in it.

Here's a side view of my toes (sorry about the darkness of the pic on the right, my flash can be tricky).

As you can see my toe was quite straight back on May 29th (the brachytoe pin was removed on May 23rd). It's still really straight but is very sloooooowly starting to relax. Interestingly, it's really only the top half of my toe that is so straight. In the pictures below it's more obvious; the 4th metatarsal is perfectly flat and aligned with the rest of the metatarsals. I took these sitting down, no weight bearing. 

As you can imagine this is very frustrating but I know that it will eventually relax and sit all the way down with the rest. I see and feel the difference everyday. I seem to be the only blogger that this has happened to. Probably because my pin had been in my toe since day 1. A common issue among the blogosphere seems to be that the toe is dragging too low and in those cases the toe eventually sits right and stops dragging or a pin is inserted to correct it. In some lucky cases the toe doesn't float OR drag at all. This is just another part of the healing process; one that I didn't anticipate. It's just another thing to deal with and move on. 

On a positive note, I was playing with all of my new sandals and these leather t-sraps are the only ones my swollen foot will fit through lol. So you see, it's not so bad. I just want my toe to do it's job and carry it's own weight :)

Week 10

This past week went by really fast, I spent the weekend at the beach and it was a blast! There's not much new to report as I'm still waiting for my next appointment which is over a week away. 

I've been using the bone stimulator every day for the full 3 hours. Also, I've been clearing out the dead skin around the pins, though there isn't much to clean anymore. My scar is looking pinkish. I plan on either getting a prescription for those silicone strips or just buying the ScarAway ones at Walgreens (they have good reviews).

Here is my latest pic. The swelling has gone down however it still comes back after a bit of walking; it's not too bad though. The 2 pins closest to my ankle start to sting after a good walk so I'm trying not to overdo it. Walking with the fixator is tiring anyway but there's no pain other than those pin sites stinging. The bottom of my foot feels normal. As you can see the middle toe bends down a little on it's own, probably due to holding 2 toes worth of weight for most of it's life, now it doesn't know what to do with itself lol! I can't wiggle the 3rd  & 4th toe yet. I'm hoping once the fixator is off it'll be fine since I can feel them wanting to wiggle with the rest. The 4th toe itself is getting more and more flexible as I gently massage and wiggle it with my finger everyday. So anyway, here I am! Still waiting and still very much aware of the metal I long to have off my foot :)

Week 9

My bone stimulator finally arrived yesterday. It's light, portable and I have to wear it for 3 hours a day but I can do it in 60 minute increments. I can walk while wearing it too. I'm wearing it over the fixator right now. 

I had my appointment today. I was scheduled to have the ex-fix removed, however because it took so long for the bone stim. to arrive my doc said he would feel more comfortable removing it two weeks from now. To say that I was disappointed would be an understatement...on a positive note the new x-ray shows even more growth so I do find comfort in knowing that I did pretty good on my own. He just wants me to wear the bone stim. for at least 2 weeks before removal so that my metatarsal will be that much stronger. It makes sense. And at this point even though I'm barely winding down from the feeling of betrayal (LOL), I feel like what's another 2 weeks? I was supposed to be staying at the beach this weekend to celebrate but like they say: life is what happens when you're busy making other plans. Maybe I can still go and just use my cast cover ;)

Here's my x-ray:

My scab came completely off. It was really thick and deep where the 2 pins closest to my toes are. Also my toe is very straight (it almost looks jarring looking at it from the right side as the rest are my toes curve down while at rest) so I asked about it. The doc says I can start pushing it downward at the base of the toe to help  with that and I'll also have therapy once the fixator is off. So anyway here we go again with the waiting! At least this time around I already know my bone is doing great :D

Week 8

This past week has flown by. I've been walking around as normally as possible while wearing the draco shoe and yesterday I did a little walking at home without it. It's getting easier with practice but of course my foot gets a little swollen afterward. This weekend I went out without crutches! I had a nice lunch out on Saturday & Sunday and did a little bit of shopping! It was tiring but so worth it. I also spent a lot of time with friends; they're all so curious about the fixator but I don't show it to them because my scab makes it look worse than it feels (it's starting to come off on it's own finally!). 


My toe is still really straight even after having the brachytoe pin removed. It feels really stiff so I need to ask if therapy will help with that at my next appointment. Speaking of my next appointment, it is fast approaching. I'm set to have the fixator removed next week. I was a little nervous about it because it will be done in the office but now I'm ready to just get it out. Doing a little research on the removal process allowed me to get some peace of mind.


Per Wikipedia on external fixation: "Installation of the external fixator is performed in an operating room, normally under general anesthesia. Removal of the external frame and bolts usually requires special wrenches and can be done with no anesthesia in an office visit." 


This medical journal article shows that 95 out of 106 patients that had an ex-fix removed would do it again without anesthesia. Also, this youtube video shows an ex-fix being removed from the first metatarsal (it's not that graphic but be warned lol). In the video the patient says all she feels is pulling as her doctor turns the pins. This sounds promising, hopefully it won't be too bad  when I have it done ^__^.

Week 7

Just got back from my appointment and I have so much great news! My x-rays show bone growth! My brachytoe pin was removed! My bone stimulator is on the way! My fixator is coming off in 2 weeks!!

Here is my xray:

A sight for my sore eyes. Because of this my doc says that at my next appointment (in 2 weeks) the fixator will be removed! He looked at my scab and said that it looks great and not to poke at it, it will fall off on it's own. Then told me I can now get my entire foot wet! This means I can thoroughly and more comfortably scrape off the reptile skin my foot has decided to grow and it's now ok if the hardware gets wet.

Then he took out some gauze squares and placed them around my toe. He was talking about how most patients don't feel the k-wire (aka brachytoe pin) when he takes it out; at the same time he started turning mine and in 3 short pulls quickly removed it from my toe. It stung slightly for a millisecond but mainly felt weird/cool because you feel it in your bone. My toe bled a tiny bit; all in all it was no big deal and I got some pink gauze out of it ;)

As for weight bearing he said I can do what feels comfortable. I confessed to him that I started walking yesterday and he says that's fine as long as I'm not in pain. Yes, that's right I started slowly walking around yesterday without crutches and it was awesome if not surreal! The only downside is the swelling afterwards but I've been told it's normal. There's gonna be swelling for a while so I intend to keep my foot elevated and ice packed when not in use LOL. Also those purplish bruise-looking marks on my foot have gone away. Yay!

And last but not least there is the business of the bone stimulator. I received a call from the bone stim. company stating that my insurance would not cover it. They said it costs $3000 but they could sell it to me for $1000 at either a lump sum or 12 monthly payments. They also mentioned that they offer a financial waiver to cover the entire cost but you have to meet certain criteria. I'll be contacted by my doc's office when mine comes in :)

This past week went pretty quickly although my restless legs has been out of control. I don't take anything for it because exercise keeps it at bay for me so this must be due to lack of exercise. That won't be a problem for much longer.

Starting Week 6

Here's a picture of my final length @ 22mm. My foot is a little swollen from being out and about. The pin in my toe makes it straight so hopefully when it's taken out my toe will curve down slightly like the toe on my left foot. I fear it will be limp but I've been assured that it won't since my tendon has been adjusting this whole time. Also, I've been putting more and more weight on my foot while still using crutches. It's getting easier to do. 

It's a strange feeling having family and friends over and not covering my foot. I haven't been honest with them (the ones that don't know about my brachy). They just think I broke my foot. To this day I don't feel like I can be open about it which is sort of sad; creating this blog feels like a big step. Personally this confirms to me that I would have never gotten over it or embraced it. Even now...do I no longer have brachy because my toe is long? Am I cured? Can surgery be considered a cure if I can still pass it on? Nobody else in my immediate or extended family has it. I'm the only one. I've read about other brachy-people (<--I use this term for lack of a better word, a toe does not a person make) with siblings or cousins or an aunt that have it too. Not me. And honestly I'm not sure having a family member with brachy would have helped me feel any better. Having brachy wasn't my fault but I know I would feel so guilty if one of my nieces got it. They're too young to tell. But if nobody else in my family has it does that mean mine isn't hereditary? Did I suffer trauma to my foot when I was too young to remember which caused the growth plate to close too early? I did have some sporty accidents but nothing major... so which is it? Whichever it is my insurance covered the surgery so even if sometimes I struggle with the "why me?" mentality at least I can see how fortunate I am to be able to get it done and over with. Only I kinda feel like a sell out, like I should have been confident enough to be ok with it. That was never gonna happen. Ugh. Yep this is all the type of stuff that crosses the mind of someone with brachy. 

On a lighter note, every time I glance at my foot now I feel like I have too many toes haha! After years of only ever showing the first 2-3 toes in peep toe sandals this is definitely something to get used to :)

Needless to say, I'm so ready for this fixator to come off. There's no pain now, it's just bulky. Reading all the brachy blogs and forums I came across, I found that the average length of time with the fixator on is 89 days with the least time being 64 days and the highest being 110 days. My next appointment is over a week from now so hopefully that's when I'll find out when the fixator is coming off and hopefully it'll be soon! I want to be in that 60 day-ish range ;) Thanks for listening to my rantings.

Week 5 May 2012



I had another follow up appointment today. My x-ray shows that there's now some haziness in the gap! And it's forming in the width of the neighboring metatarsals which is so neat. The doc gave me the go ahead to scrub away at my foot with some soapy water and my goodness it felt so good. I made sure to keep the fixator dry and then lotion-ed the rest of my foot. He also said for me to try and practice with putting more weight on my foot. I tried a little last week but it was pretty nerve-racking. He elaborated on the sturdiness of the fixator and reassured me that it's not gonna cause any damage.

My foot still looks discolored but there's no pain. It looks like I'm bruised but there's no pain to the touch.  It's also pretty swollen still, hopefully that will go down soon to make it easier to plant my foot on the ground.

All in all the doc says I'm doing great and all we need to do is wait for more growth. As for the bone stimulator the girls at the office are working with my insurance company for approval. We'll see how that goes!

April/May 2012 Week 4


At this stage I am winding down on my distraction. To be honest I didn't think I would keep going through this past weekend because of the pain but I did. I kept thinking that I've already gone his far....might as well get the exact length I want! So today might be my last day to turn the screw depending on how my brachy toe looks at the end of today. My 4th followup appointment was at 27 days post op. They unwrapped my dressings and took xrays. The gap is almost 2cm long! The doc said everything looked perfect and said he was still going to leave in the brachytoe pin. He said they were gonna order my bone stimulator now and that I should start putting weight on my foot! I tried a little bit today but it's gonna take me a little bit to get the hang of it :)

My foot looks pretty bruised but it's because of all the distracting and stretching. This picture is at 18 mm. Almost done!

April 2012 Week 3

My third follow up appointment was on Day 20. At this point my brachytoe has surpassed my pinky toe after 12 days of continuous distraction. The gap in the xrays is getting bigger and bigger! I still had the horrible pains but the painkillers kept it at bay. The doc instructed me that I can now start cleaning the wound with peroxide and betadine using q-tips and fresh gauze daily. This part is painless. Here is the pic for week 3.

I logged into my insurance website to see if my surgery explanation of benefits was available. It was! It showed as recently finalized at over $10K total billed charges.

As this is still recently finalized I'm not sure what my share is since I have not received a bill. 

**Update**

I finally got a bill in the mail, my share is just under $500. I paid my deductible at the surgery center on the day of surgery so that was separate. 

***Update Update***

Since my last update I have received more bills in the mail. The biggest is for the actual surgery center @  $40k. So in total the bills for the surgery center, the anesthesiologist, the anesthesiologist assistant, the surgeon (my doc), a surgeon assistant, the crutches and the darco shoe comes out to over $54,000 before insurance with my share at less than $1,000. Good thing I have insurance O__O.

April 2012 Week 2


My 2nd follow up appointment fell on the morning of Day 14 post op. By this point I was 5mm (1mm per day)! And this is also when I started to hurt. The first 3 days of distracting were fine. There was no pain and the screw would easily turn. On Day 4 there was more resistance when turning and immediately afterwards there would be a stinging pain throughout my brachytoe followed by 30 minutes of intense ache around the fixator area. The pain would come and go in waves: burning, aching, stinging and repeat. I started taking the painkillers again and it would help some but it would mainly take the edge off so I could relax and not be so tense. Don't be afraid to ask for more pain medication!

The morning of my appointment they unwrapped my foot and took xrays. The nurse came in and said that the nurse aide was going to remove my stitches which was good news because they were hurting/stinging. I told them what I was feeling the days before and they said the stitches coming off should help relieve some of the pain. The nurse aid was so nice and gentle! She took her time and I barely felt her removing them. There was a last stitch however that the regular nurse came in to take a look at and she snipped and removed it. That last stitch hurt so bad I could tell that was the one that was giving me trouble! After a while the stinging went away.

The doc said my foot looked great. I was surprised to see growth that quick. My brachytoe was now even in length with my pinky! In 5 days! So the doc wrapped it up and off I went :)

April 2012 Week 1


My follow up appointment was on Day 5 after surgery. The doc unwrapped my foot; the gauze was bloody and my skin and nails were yellowish from the betadine they used at my surgery. Warning: the picture of my foot is a little gory!

They took xrays and said everything looked good! There wasn't much swelling or bruising (that's dried blood on the right side of the fixator). I realized that I had yet to use ice pack this whole time!! Oops! Just goes to show that the surgery itself is truly minimally invasive even though it doesn't look like it ;) Surprisingly there's also a pin sticking out of my toe. He says it's to make sure the tendon stays where it's supposed to which is fine with me because I don't feel it AT ALL!

The doc then brought out an allen wrench and made 2 full turns on the screw. I felt nothing.

 He gave me the wrench and instructed that I was to start turning the screw 1/4 clockwise 4 times a day starting on Day 9 post surgery. This will be different for everyone, you must follow what your doc says to the letter. Also, compared to the other blogs and youtube videos I've seen my fixator is a little different. There is only 1 screw that needs turning and you cannot see it in this pic because it is at the tip end of the fixator. Also the pins in my foot appear to be pretty short compared to the fixators used maybe 2-3 years ago.

So..... they cleaned my foot up with peroxide, wrapped me up with gauze and the ace bandage and sent me on my way :)

April 2012 Prep & Surgery Day!


To prepare for the surgery and my future disabled-ness I decided to read and dissect every single foot surgery forum I could find online! I got a temporary handicap placard for my car, bought a sweat-proof ice pack, a waterproof cast cover, this shower stool, this knee scooter, and this shower head with an attached hose to use while sitting:

My surgery was scheduled at 10am at an outpatient surgery center nearby. I arrived with my husband at 9am as instructed when the receptionist called me the week before and again the day before surgery. She said to not eat or drink anything after midnight, to stop taking birth control (to prevent blood clots), wear loose clothes and to arrive 1 hour early for paperwork and prep. They took me in, weighed me, did the urine pregnancy test and I changed into a cozy warm gown. Everyone kept asking me what I was having done in order to make sure I was the right person. I was given a purple marker to write YES on the foot I was to be operated on. Then they inserted the IV (this was my first surgery EVER and I was quite nervous) and the nurse said "this is the most you're gonna feel today". She was right because it just felt like a pinch. Then the anesthesiologist came in and gave me a "cocktail" haha! He and my doc wheeled me to the OR and I woke up after what felt like a nice nap with my foot wrapped up like this:

My doc said everything went well! He told me not to get it wet or put any weight on it. They gave me this medical boot and some crutches. My husband and a nurse helped me change back into my loose clothes and helped me into a wheel chair. The valet brought my car around and I was back home by noon. I kept my foot elevated at ALL times and had zero pain! My husband picked up my painkillers and antibiotics at the pharmacy while I slept and I started taking them immediately as instructed. After around Day 3 I stopped taking the painkillers since I had no pain but kept on with the antibiotics until they finished :) Overall I saw that I was able to do everything on my own thanks to the scooter so my husband went back to work. 

Hi! My name is Brachyfemme; I'm a twenty-something Texan girl who suffers from a condition called Brachymetatarsia. In short (pun intended): the 4th metatarsal on my right foot stopped growing in childhood which made my fourth toe (or "ring" toe as I've heard it called) appear to be a lot shorter than the rest.

Is brachymet painful? Sometimes. I love to run however after a couple of miles of running, the right half of my right foot goes uncomfortably numb probably due to uneven weight distribution. Also, I love shoes and almost all of them have material than run right across my lil toe and cause it to get rubbed raw :(

In addition to physical discomfort, this has stopped me from doing a ton of things. For example: Texas + Memorial Day= float the river. It's a blast but less so when everyone is wearing flip flops and you're wearing crocs or other hideous waterproof shoes. Same goes for waterparks, the beach, and swimming pools. Only my immediate family has seen my foot. Nobody else in my entire extended family has it.

Probably the most sadistic thing I ever did to myself was work at a shoe store surrounded by shoes I couldn't wear. Once at the store I saw a girl walk in with brachy on BOTH feet and she was rockin' those flip flops like nobody's business. If only we all had such confidence.


As I said, this is something I have been deeply embarrassed about my entire life and finally took the plunge and had the external fixator surgery 4 weeks ago today. I could've gone to Arizona to have Dr. Lee do the 1 step lengthening but I found an awesome doc close to home so I figured why not just keep it local ;).


Anyway I only have 1 clear-ish "before" pic of my foot due to I hated my foot and never took pics of it. So I'm posting it here so you can have an idea of what it looked like :)